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Health Evidence Bulletins - Wales

APPENDIX:STATISTICAL INFORMATION SOURCES & AUDIT

The purpose of clinical information is in the assessment and analysis of health status and the needs of the population served. It is also important in outcome measures and the application of resources to health care. The importance and the relative paucity of outcome data on cancer in Wales have been stressed by several influential reports. 1,2,3
Data on every registrable cancer death in Wales is currently available from the Welsh Office and the office of National Statistics (ONS, previously OPCS). The ONS data are taken from registration of deaths relating to district of residence. Both the Welsh Office and ONS publish other useful summary information. 4,5,6
The main source of statistics on cancer in Wales is the Welsh Cancer Intelligence & Surveillance Unit (WCISU)6 - formerly the Welsh Cancer Registry. Additional important information, especially for the purpolse of clinical audit, is available from local registries like the South West Wales Cancer Treatment & Outcomes Registry (CANTORIS) based in Swansea.
Denominator and morbidity data are more difficult to obtain. The Patient Episode Database for Wales (PEDW) provides only limited information on hospital episodes as do the National and Welsh Morbidity Studies of General Practice Activity.8,9
Certain principles relate to all data collection:

Audit
Recommendations for audit in cancer care are summarised in key documents from the NHS Executive10-13 and the Scottish Intercollegiate Guidelines Network14,15
Recommendations for audit and minimum quality standards in breast cancer care are covered in the documents produced by the S E Wales Breast Cancer Group16 and for breast and colorectal cancer by the Welsh Office Cancer Services Co-ordinating Group.17,18

  1. Department of Health / Welsh Office. A Policy Framework for Commissioning Cancer Services (Calman-Hine Report). London: Department of Health, 1995.
  2. NHS Wales. Cancer Services in Wales. Vol.1. A Report by the Cancer Services Expert Group (Cameron Report). Cardiff: Welsh Office, 1996.
  3. Welsh Office. Welsh Health. Annual Report of the Chief Medical Officer, 1996. (Chapter 4 Health Gain Targets). Cardiff: Welsh Office, 1997.
  4. Office for National Statistics. Annual Abstracts of Statistics. London: HMSO, 1998
  5. Welsh Office. Health Statistics Wales. Cardiff: Welsh Office, 1995
  6. Welsh Cancer Intelligence and Surveillance Unit. Cancer Registrations in Wales 1974-1990. Cardiff: WCISU, 1998.
  7. Welsh Health Common Services Authority. Patient Episode Database for Wales. Cardiff: WHCSA Information Group, 1996.
  8. McCormick A, OPCS. Morbidity Statistics from General Practice. Fourth National Study 1991-1992 London: Office of Population Censuses and Surveys, 1995.
  9. Welsh Health Common Services Authority. General Practice Morbidity Database Project. Cardiff: WHCSA, 1996.
  10. Cancer Guidance Sub-Group of the Clinical Outcomes Group. Improving Outcomes in Colorectal Cancer. Guidance on Commissioning Cancer Services; Improving Outcomes in Colorectal Cancer. The Manual. London: NHS Executive, Department of Health, 1997.
  11. Cancer Guidance Sub-Group of the Clinical Outcomes Group. Improving Outcomes in Colorectal Cancer. Guidance on Commissioning Cancer Services; Improving Outcomes in Colorectal Cancer. The Research Evidence. London: NHS Executive, Department of Health, 1997.
  12. Cancer Guidance Sub-Group of the Clinical Outcomes Group. Improving Outcomes in Breast Cancer. Guidance on Commissioning Cancer Services; Improving Outcomes in Breast Cancer. The Manual. London: NHS Executive, Department of Health, 1996.
  13. Cancer Guidance Sub-Group of the Clinical Outcomes Group. Improving Outcomes in Breast Cancer. Guidance on Commissioning Cancer Services; Improving Outcomes in Breast Cancer. The Research Evidence. London: NHS Executive, Department of Health, 1996.
  14. Scottish Intercollegiate Guidelines Network (SIGN). Colorectal Cancer. A National Clinical Guideline. Edinburgh: SIGN, Royal College of Physicians, 1997.
  15. Scottish Intercollegiate Guidelines Network (SIGN).The Use of Palliative Radiotherapy in the Treatment of Non Small Cell Lung Cancer. A National Clinical Guideline. Edinburgh: SIGN, Royal College of Physicians,1996.
  16. South East Wales Breast Group. The Development and Maintenance of a High Quality Breast Service in South East Wales. Cardiff: Velindre NHS Trust, 1996.
  17. Cancer Services Co-ordinating Group. All Wales Minimum Standards for Breast Cancer Services. Cardiff: Welsh Office, 1998.
  18. Cancer Services Co-ordinating Group. All Wales Minimum Standards for Colorectal Cancer Services. Cardiff: Welsh Office, 1998.
  19. NHS Executive. Guidance on commissioning cancer services. Improving Outcomes in Lung Cancer: The Research Evidence. London: Department of Health, 1998.
  20. Scottish Intercollegiate Guidelines Network. Management of Lung Cancer. Pilot edition. Edinburgh: SIGN, February 1998.

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Health Evidence Bulletins: Wales, Duthie Library, UWCM, Cardiff CF14 4XN. e-mail: weightmanal@cardiff.ac.uk